Translational medicine patient registries in medical science and clinical practice
00172-KVA
2024/25/1
Dr. Hegyi Péter
Központi szervezésű kurzusok
online
15
0
0
Other
1
10
2024-09-23 08:00:00
"Within the framework of the course, students can get acquainted with the structure of the register, the personnel involved in the process and their tasks, the IT background that builds the register, the topics of data management and ethical approval, and the possibility of biobanks. The course is practice-oriented, followed by the solution of practical tasks based on what has been thought, the results of which are presented by the student in the form of a short oral presentation at the end of the lessons. The aim of the course is to acquaint the student with the advantages and disadvantages of this research modality and the methods of register analysis. Lectures: 1. The role of patient registries in translational medicine, interdisciplinary work-groups 2. The role of patient registries in clinical practice and evidence-based medicine 3. Initiating patient registries I.: bias and preventing bias in patient registries 4. Initiating patient registries II.: Case report forms (CRF) 5. Initiating patient registries III.: Overview of the registry, final approval, translation 6. Initiating patient registries IV.: Ethical approval 7. Initiating patient registries V.: Electronic case report forms (eCRF) 8. Maintaining patient registries I.: enrollment 9. Maintaining patient registries II.: data acquisition, data-quality assessment 10. Maintaining patient registries III.: patient clubs 11. Data: data tables, formatting, analysis. Basic Excel-training 12. Hypothesis generating, visual representation of the results 13. Publication strategy 14. Use of the results in clinical practice and research planning"
További oktatók: Péter Hegyi, Szilárd Váncsa, Rita Nagy, Marie Engh, Brigitta Teutsch, Alexander Schulze Wenning, Mahmoud Obeidat, Anett Rancz